Tuesday, May 21, 2013

More stuff God is teaching me

It was Crazy Town in our hospital room today.  The boys had way too much energy, and attitude, for what little space we live in.  When the doctors came in for rounds, I tried to act like I was NOT mortified by the fact that Jonah had his nose in the corner for spitting on Daniel.  Come on in folks, don't mind the noise, just a little parenting going on in this room.  Naps did everyone a lot of good and even though the energy level only increased throughout the day, we nipped the attitude in the bud.  Score one for the parents!

Caleb's blood was drawn for his antibodies to be tested again... hopefully we will know the results in the next day or two.  I appreciate all your prayers that these antibodies would be gone.  We are praying for an amazing answer from the doctors on this one.  

In other Caleb news, he is so fat.  That's not really news if you've seen him, or especially if you've tried to pick him up recently.  He weighs 30 pounds!  He is a beast!  He looks like he must have eaten that scrawny little kid that got admitted to the hospital way back on November 1st!  Yes, a little bit of that is because he retains fluid, but mostly it is legitimate weight gain.  It's just another example of a positive thing that has come from waiting this long.  The other kiddos that have gotten hearts have all been really skinny... no one would ever describe Caleb as skinny now.  The boy has multiple chins and a gut that makes him look like he's trying to keep up with his mama's growing belly.  Thank you God for the physical reserve he will have after surgery, with all that chunk to help him recover and get strong fast.

One more bit of family news before I get to the meat of this blog post: Daniel and I got invited to attend the national Donate Life conference this year, which happens to be in Indy in June, to speak about Caleb and share our story.  We are really humbled that God keeps giving us opportunities, big and small, to talk about our experiences in the last year.  We pray that what we share would act like a big fat spotlight drawing attention to God and His goodness.

OK, so on to the meat.  You have probably noticed by the tone of this post that I'm in a pretty good place right now.  It is because God has been speaking to me a lot and yet again changing the way I think about this time in my life.  You know, if you're thinking how exhausting all my ups and downs are, let me tell you, they ARE exhausting.  But I think that's how we grow into maturity.  I don't wallow in the downs... I process through them and ask God about them and learn from them.  And if I allow Him into the mess of my life, He always brings me comfort and joy just when I desperately need it most.  

So last week there was this other family that came to Riley with their little daughter and they had just found out that she had cancer.  I knew the father when we were kids and I know his family and was very surprised to run into him and his wife in the cafeteria one day.  We talked for a bit and connected quickly, especially because they also follow Jesus and we could relate to each other on a faith level.  Of course I was not thankful for the reason they were here, but I WAS thankful that God had crossed our paths with another couple that perhaps we could get to know and be friends with here at Riley.  Well, that opportunity was short-lived because just literally a few days later, they got the incredible news that their daughter's tests showed that her cancer was mostly benign and she wouldn't even need chemo or radiation.  In fact, they got to go home shortly thereafter.  

I was so happy for them.  I had only just talked to them a couple times and they were gone, sent home with good news.  And yet I couldn't get the thought out of my mind... some kids go home with good news, and some kids don't.  Some kids get better and some kids die.  There wasn't even a "why" to my thoughts, I was just trying to accept the reality that there seems to be no rhyme or reason to the different outcomes people are dealt.  I was taking a walk by myself thinking about this, thinking about how that family was here a matter of days, they prayed hard and believed God would make their daughter better, and then He did and they went home.  And thinking about how different my own story is from that.  I'm waaaay past the point of wondering if I just had stronger faith or something if maybe MY kid would get better too.  I don't think those kinds of things anymore.  I don't feel resentful or jealous, I just (begrudgingly) accept that for reasons way over my head, God has chosen THIS path for MY family.

And as I was thinking this, as I was pondering how much adversity there's been in our life and all the struggle and pain and fear and disappointment that our life includes at times, God cut through my thoughts with a single word: "favored".  I almost stopped walking.  Excuse me, what, God?  Favored?  What on earth does that mean?  I am reflecting on the suffering of my life and You interrupt with "favored"?  And then I remembered what I've been reading about in my Bible about Mary, Jesus' mom.  I've been thinking about her a lot lately, and I remembered something about her.  When an angel showed up to tell her she was going to have a baby even though she was a virgin, and the baby was going to be the son of God, the angel said, "Greetings, favored woman!"  And Mary was confused, probably thinking something like, "Favored? How am I favored?"  The angel explained what was about to go down, and after receiving what had to be the most mind-blowing information of all time, Mary's response was resolute.  She said to him, "I am the Lord's servant.  May everything you have said about me come true."

Then I realized what God was saying to me.  Mary had the awesome privilege of being the mother of Jesus, but with that privilege came the personal sacrifice of watching her son go through unthinkable pain.  I mean, think about what this woman had to endure as a mother... watching her son grow up, knowing he only sort of belonged to her, and witnessing him being rejected, tortured and eventually killed.  And this woman was "favored"?  That doesn't sound like being favored, it sounds like being punished.  But I think that's what God is saying.  His plans almost never involve things going like WE would map them out.  His plans almost always involve our own discomfort, disillusionment, pain and suffering, until we have been stripped of all our own plans and desires for this life.  Until we are totally and completely surrendered to whatever path He is choosing for us.  Maybe it should never be our goal to achieve this relaxed, easy, planned-out life.  I'm pretty sure you can't follow Jesus and expect that.  Jesus calls us to live in Opposite World, where instead of seeking our own comfort and pleasure, we seek to live a life that brings attention and fame to God.  Instead of trying to live a nice, happy life, we accept the circumstances HE chooses for us, learning to not only be content with the cards He deals us, but to even find joy and use every circumstance for His purposes.  I know that seems like crazy talk, but if you know Him like I am getting to know Him, you know that actually this is the only way to live a full, abundant, amazing life.  God was whispering to me that day that I am favored by Him, His beloved daughter, one that He has chosen to deal a lot of pain, but pain that He is using every drop of for His good plans.  And I want so badly to be able to look in the face of all the craziness around me and say to Him, like Mary did, "I'm your servant.  Let everything You want to do in my life come to be."  

Do I think I should stop praying for God to give Caleb a new heart?  No way, of course I pray that every day.  I pour my heart out to God all the time, and tell him how much I want Caleb to live, and be strong and have a long life.  But I'm learning to also accept when He doesn't answer my prayers the way I want.  And I know now that just because He hasn't answered my prayers the way I want doesn't mean He is punishing me.  Quite the opposite.  It means I am favored by Him and He has chosen to use my life for bigger purposes than I ever could have dreamed up.  Help me to trust You Lord, and help me to believe with all my heart that what You're doing is far better than what I can even imagine. 

9 comments:

  1. AMEN!!!! What a wonderful reminder of who God is and who we are. We are HIS, create BY Him and FOR Him! HE gets to do whatever HE wants, whenever HE wants. There is so much peace in that realization. No matter the outcome in ANY circumstance, knowing that God is sovereign allows us the freedom to rest in Him and trust His ways are best........even if we don't see it. I remember many years ago, doing a Christmas program with the choir at FBC. We sang a song and it goes like this:

    Trust His Heart

    All things work for our good
    Though sometimes we don't see how they could
    Struggles that break our hearts in two
    Sometimes blind us to the truth
    Our Father knows what best for us
    His ways are not our own
    So when your pathway grows dim
    And you just don't see Him
    Remember you're never alone

    God is too wise to be mistaken
    God is too good to be unkind
    So when you don't understand
    When you don't see His plan
    When you can't trace His hand
    Trust His heart
    Trust His heart

    He sees the master plan
    And He holds our future in His hand
    So don't live as those who have no hope
    All our hope is found in Him
    We see the present clearly
    But He sees the first and the last
    And like a tapestry
    He's weaving you and me
    To someday be just like Him

    God is too wise to be mistaken
    God is too good to be unkind
    So when you don't understand
    When you don't see His plan
    When you can't trace His hand
    Trust His heart
    Trust His heart

    He alone is faithful and true
    He alone knows what is best for you

    God is too wise to be mistaken
    God is too good to be unkind
    So when you don't understand
    When you don't see His plan
    When you can't trace His hand
    Trust His heart
    Trust His heart

    When you don't understand
    When you don't see His plan
    When you can't trace His hand
    Trust His heart
    Trust His heart

    Continue to trust HIS heart. (Jer. 29:11)
    Love you guys and consider it a privilege to take your family to the Throne of God. Take care and praise God for the great news of a good few days.

    Love, Dena

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  2. I can only echo Dena's words. You amaze me Katie, and you show the Glory of God through your life's path more than you will ever know. Never ceasing to pray, with love~Miss Pam

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  3. Wow - you are favored and cherished by our Father! I remember early on when you would respond to a post/prayer/encouragement with "I will ponder and keep that in my heart" - Mary's expression and heart. Praying daily for you and with you!

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  4. You are an extraordinary woman of faith! Thank you so much for sharing your journey, your spirit is truly uplifting. Our prayers will continue!

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  5. Katie, I remember when you wrote the first blog,when you had just found out you would be having a heart baby,I read your profile and started to know the grown-up Katie Cox. I read about your marriage to Daniel and your time serving on foreign fields; about your firstborn son, Jonah. I started praying for your family and your unborn son on that day and I continue to pray for you and have Caleb on our prayer list at church where we pray for him every Sunday. When I first read about Caleb's diagnosis my heart hurt for you and Daniel...what a difficult thing to learn!! As I prayed, I felt very strongly that God had a very specific purpose in allowing this to happen to a couple who loved Him and was serving Him faithfully. I felt in my heart that God was going to use you and Daniel in a mighty way to further His Kingdom to those who are hurting. From reading your blog, I know that you have a wonderful ability to express yourself in such an honest, open way that you would be able to reach others who are going through life's toughest journey with the message of God's love and His plan for every life. You don't sugar-coat the hurt, the pain, the struggle, but you have the faith needed to see you through! I knew that God had some exceedingly important lessons for you to learn and then share with others as you have done so well! I know you are fully aware that there would have never been radio and television opportunities for you to share if Caleb had received his heart right away and you had gone home. It is your endurance and strength that have led you to these opportunities; your faith in God's Sovereignty. Yes, dear one, you are God's favored one, for this place; this time. I believe with all my heart that God has a new heart for Caleb...it may be through a transplant, it may be through healing the heart he has (my deepest desire!!), or it may be in Heaven...He alone knows the plan He has for him. I just know, when the time is right, Caleb will have a new heart! God bless you!! I pray for you and the child you are carrying, Daniel for strength for each day, Jonah for having to endure a very different childhood than most other children, and for Caleb to keep up that feisty, all-boy spirit that will help him fight through to victory and a new heart!! I trust you know that your family is loved and lifted to the Throne probably more than any other family I have ever known!! God is good...ALL the time!!! P.S. I was so hoping you would be able to connect up with Naomi's family but they were able to go home so quickly, I didn't even get a chance to tell you about them! I'm so glad you met them; I'm sure you were an encouragement to each other!

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    1. Katie, We follow your news with amazement at how you allow God to speak through your lives. This note brings me to tears in the knowledge and faithfulness of our God. I cry for your closeness, pray for the future for your whole increasing family! You are all loved by God and us.
      Love, Marcia I

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  6. Katie, I am at a loss for words. You are such a strong, and faithful woman. I am sorry for what you and your family are going through, and praying for Caleb to get the right heart, at the right time. But, through all of this, you are showing that God loves us SO much, even as He allows pain and suffering to enter our lives. I can tell He is using these circumstances to grow you, and make you the woman He has created you to be. Please continue to be strong, and keep sharing your thoughts with us. May God continue to bless, and provide for, you and your family.

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  7. Katie, you are one amazing lady. your faith is astonishing to me.

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  8. Thank you for sharing these amazing words God gave to you. I wanted to tell you they are being used by God to minister to another mama's broken heart. A couple months ago I had a miscarriage after many long months of trying to conceive. The words you wrote capture exactly how I have been feeling recently. I keep wondering if I did something wrong and that's why my baby was taken. Is God punishing me? Why does everyone else get to keep their babies? What did they do that God allowed them this blessing? Our human minds have such a hard time grasping the concept of bad things happening to good people. But it's a part of life. If Job were here today he could testify to this. He was blameless in God's eyes and yet he suffered tremendously. Your explanation of being "favored" is the perfect way to explain this and is something I've never heard before. I am not being punished and others are not being rewarded. I am simply being used by God to bring glory to Him! What a hard lesson this is for us humans to learn.

    A passage of Scripture that has really helped me these past few months has been 2 Corinthians 1:3-7 (ESV) (I'm sure you are familiar with it)

    Blessed be the God and Father of our Lord Jesus Christ, the Father of mercies and God of all comfort, who comforts us in all our affliction, so that we may be able to comfort those who are in any affliction, with the comfort with which we ourselves are comforted by God. For as we share abundantly in Christ's sufferings, so through Christ we share abundantly in comfort too. If we are afflicted, it is for your comfort and salvation; and if we are comforted, it is for your comfort, which you experience when you patiently endure the same sufferings that we suffer. Our hope for you is unshaken, for we know that as you share in our sufferings, you will also share in our comfort.

    Thank you for sharing your heart, and know that God has used your trial to help comfort me in mine.

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