Friday, April 4, 2014

The happy haps

As I sat down to write my first blog post in a couple months, I thought, "What is there to update about?  Things seem like they have been pretty uneventful..."  That is, until I started looking at some pictures.  Then I realized I need to catch you up!  Here's a highlight reel from the last few months...

On January 27, Caleb turned three.  His birthday was celebrated with Batman cupcakes and more than a few happy tears from Mommy... you can't blame me, considering that there was a time I didn't know if Caleb would ever have another birthday.

In February, our family was invited to a New Castle boys varsity basketball game because the team and coach wanted to honor Caleb with an award, on behalf of the community, for outstanding courage and strength.  Caleb got to ham it up as the crowd cheered for him.

In March, our family was invited back to the Ronald McDonald House for an event for their board of directors and donors.  The event featured Caleb's story and Dr. Jeff Sperring, the President and CEO of Riley was a guest speaker, along with yours truly.  We got to stay all night in our old apartment and my boys thought it was a vacation.  The RMH staff treated us like we were coming home for a reunion and it was great to see them all again, and great to stay in what still feels like our second home.  We had a special surprise when Dr. Mark Rodefeld, the surgeon who performed Caleb's heart transplant, came to the event.  It was really special to see him again, and I know it was special to him to hold Caleb in his arms, knowing the part he played in Caleb's amazing story.

On March 27, Caleb was officially SIX months post-transplant.  As that date approached, and flu season ended, and Caleb continued to do so incredibly well, we began to let him venture out in the world more.  We have just gone back to church and Caleb joined his little Puggles class, which he absolutely loves.  The first time I dropped him off at his class, I couldn't believe we'd arrived at a point in our life where he could join in with what other kids were doing.  We also have taken him to the Children's Museum, both the one in Indy and the one in Muncie.  Watching him run and play and simply wander around with wide eyes will never get old to me... I hope he always approaches new experiences with the kind of enthusiasm he has nowadays.

And mostly we have just been enjoying normal life.  Day after day of just being a family, together, in our home.  Healthy... happy.  As winter is finally giving way to spring, our life isn't starting to feel routine.  Instead, there is a growing excitement for the amazing experiences that are ahead.  And by "amazing", I mean things like playing in the dirt and going to the park, watching fireworks from someplace other than a hospital rooftop, and anticipating our first vacation as a family of 5 (the beach in May... YAY!).  

These six months since Caleb got a heart transplant and we have returned home have been a very quiet season for me.  And I've been trying to enjoy and savor it, even when it has seemed boring at times.  I'm aware that another new season is about to begin.  Our seclusion is over and God is stirring in my heart that new things are around the corner.  I've been invited to speak at a few events (mostly churches, although speaking at the RMH event was a blast) in the next couple months, and I have discovered a growing passion to share my heart with others.  I hope more opportunities to do that come my way.

So much to look forward to... I wish time would slow down.  My babies are getting too big too fast.  Jonah has his first loose tooth and starts kindergarden this fall.  Caleb is in the "I'll do it myself!" phase and not only wants to dress himself, but has strong opinions about which super hero jammies he's putting on each night.  Then there's my baby girl... Lucy rolled over today for the first time.  Sigh.  All this stuff, this normal life stuff, this is what I waited for all those months.  I still can't believe this is my life.

Thursday, January 23, 2014

My kid is awesome

I have to share a video with you but it'll have to wait until tomorrow because my internet is slow, so stay tuned.  I took it yesterday at the hospital and it proves my son's awesomeness.  Caleb had his third biopsy since his transplant so we spent the day at Riley.  They used a catheter to go in through his neck to take samples of tissue from his heart.  Before his cath, he had to go and have blood drawn.  This particular nurse had never drawn his blood, and she asked him before she started, "Don't you want to sit on your daddy's lap?" and he said, "No, I'll sit by myself".  I don't think she knew what to do with this nearly-3-year-old who had no apprehension about what she was about to do.  So I took a video of him getting his blood drawn.  He blows us away.

After blood draw, we headed to the cath lab and he got changed into his lovely little gown, which he proceeded to dump bubble juice all over.  I went back with him and stayed with him until he was all the way asleep under anesthesia.  He never once cried.  He held my hand, and laid down on that table and let them put the mask on him, breathed into it steadily until he was asleep.  As unsettling as it is to see your child go under anesthesia, my discomfort was outweighed by my pride.  Caleb is so strong and I could not be more proud of him.  

The cath took about an hour and they allowed him to wake up shortly after it was over.  That was the only hard part of the day; coming out of sedation is hard anyway, and we weren't there of course and he hadn't eaten in almost 24 hours at that point.  He was crying pretty hard for me when they wheeled him into the recovery room where Daniel and I were waiting for him.  He sat on my lap and just laid his head on my chest for a good hour before he was totally comfortable again.  I let him eat a cupcake before he ate his dinner and that helped.  He then proceeded to eat for a solid 30 minutes, including most of the sandwich I had gotten for myself.  For the rest of the night, he was in a perfectly good mood.  I couldn't stop kissing his little face.

I know it might sound weird, but I love going to Riley.  It's like going to my other home with friends I miss and love to catch up with.  When Caleb was inpatient, our transplant coordinator, Debbie, used to always tell me that as soon as Caleb got his heart, we would go home and it would all just seem like a blur, almost like it never happened.  That has not been the case.  I could wake up tomorrow morning in my bed at the Ronald McDonald House and it would feel completely familiar.  But that's not a bad thing.  That place is where my son got better, where we got another chance for a life together as a family, and I will always feel a connection.  It was our home for a year and that doesn't go away quickly.  Or maybe ever.

We visited with lots of nurses, and even some of our friends who are still inpatient after months in the hospital.  It made my heart ache to spend time with people that I so desperately want to have what we have, a new heart for their child so they can go home.  I couldn't get them out of my mind... I talked to a friend, Linda, whose daughter has been there since last July, and their room is next to our old room.  I could see the physical exhaustion and desperation on her face.  I prayed for her last night when I got up in the night to feed Lucy.  I wished I could do something for them.  I know it encourages her to see Caleb.  She told me that she wasn't interested in breaking our record for how long we'd been there.  I hope with all my heart that she doesn't.

This morning we were all exhausted after spending the day in the hospital and getting home and to bed late.  Caleb had physical therapy and I wondered how he'd feel about it after his day yesterday, but he loved it as always.  Caleb has physical therapy twice a week, just for the next few months, to help him build strength after being weak and sick for so long.  He is quickly making up for lost time.  In fact, in his first week he already met his goals for the month!  Brett Fischer, Caleb's physical therapist, has started an organization called Victory Lane that focuses on families of kids with special needs.  Victory Lane exists for the WHOLE family, and not just the child with special needs, which I think is SO important.  I like going to physical therapy too, because Brett is one of those people who gets what our life is like.  You'll definitely be hearing more about Victory Lane because it's a cause that is near to my heart and I hope I can be involved as it grows.  

On our way home from physical therapy, we got a call from Debbie saying that the results from Caleb's biopsy were great, that everything looked great and the team is thrilled with how Caleb is doing.  We celebrated by getting McDonalds for lunch (not my choice) and having a dance party in our kitchen.  We cranked up the music and Jonah attempted to breakdance while Caleb tried to copy.  Daniel's moves were probably my favorite of all, and we finally had to stop because my poor children were desperate for a nap. Caleb slept for four hours... I think he'd earned it.  A full day at the hospital including a heart cath, and he gets up in the morning and rocks it at physical therapy?  That kid could have probably asked me for anything today and I would have said yes.  Good thing all he wanted was a McDonalds cheeseburger.

I know we won't always be the ones getting good news, so I cherish these days.  I remember, all too well, that not long ago we were the ones sitting in a hospital, waiting and watching our child get sicker.  Tonight I am going to pray for those parents, my friends who are still waiting for their good news.  I'm praying for their turn to come to have a dance party and for God to sustain them while they wait, just as He did us.  

Thursday, January 16, 2014

Return of the Kinnairds

Happy Winter!  On principle, I really want to be one of those people who enjoys each season for its own unique beauty… but holy crap, I can’t wait for spring.  I do love the snow, though, and I’m hoping to take the boys sledding soon.  We started what I hope becomes a new tradition back in December; during the first big snowstorm we waited until after we’d eaten supper one night and then we all 5 bundled up and took a walk in the snow at nighttime.  It was so much fun to walk around our neighborhood and look at all the Christmas lights.  The boys loved it so much they would have stayed outside until they had hypothermia.  When we got back, we turned on Christmas music and I made hot chocolate with whipped cream and sprinkled some green and red sugar on top to be extra fancy.  The boys loved it….  Ok, ok, winter has some great moments.  Christmas was great of course, and none of us wanted to take down our tree.  I took this picture on January 3, when I was getting ready to take the tree down and realized that I hadn’t actually taken any pictures of it yet.  I'm kind of the worst when it comes to remembering to take pictures of my kids. 

Caleb is officially out of his strictest isolation period and is now able to leave the house some, which has done wonders for my mental health.  Towards the end of December I was getting dangerously close to losing my mind.  We are still being pretty protective of him.  We try to minimize his exposure to groups of people, and especially groups of kids.  Once flu season is over, he can really be more free. He has had a cold, and survived it, so now that we’ve gotten over that hump, I’m a little less freaked out about the whole thing.  Being a germophobe is a totally new experience to me.  Before Caleb’s heart transplant, I was much more of the so-what-if-he-licked-the-ground mentality.  Now we go through hand sanitizer by the gallon.  Our official position is that we are as careful as we can be, but we want him to live his life.  I want him to do normal stuff.  Like go to Wendy's when his mommy is so cooped up that she is stupid enough to take three kids to a restaurant by herself.  (This really happened, as evidenced below, and it actually was pretty fun.)

It’s funny… we’re starting to do normal stuff, but I still don’t quite feel “normal”.  I still don’t totally feel like we’re “home”.  Even though I am so happy with how my life is going and so thankful for everything I have, I feel a little off.  Well, sometimes more than a little off.  I don’t know what I was expecting, but our new life is a little unsettling sometimes.  It’s hard to put into words.  The best way to describe what I’m talking about is summed up in a scene from Return of the King.  (If you are not a Lord of the Rings fan, I’m sorry.  For you.)  In Return of the King, at the very end, the four hobbits return home after being away for over a year on an epic journey.  During that year, they have traveled so far and seen things they never knew existed.  They faced evil and war and pain and loss.  And after all of it, after eventually triumphing against all odds, they return to the homes they had longed for.  There’s a moment where they go to the old tavern where they used to spend their time and they sit down together.  It all looks exactly the same as it did when they left, and you think they must be so glad to be home.  But they look at each other in silence.  And you know that even though they are home, life will never be the same for them.  They have changed, fundamentally, because of what they’ve gone through.  I watched that movie for the first time in a while and I couldn’t stop myself from crying during that scene.  I cried because I understand that sometimes you’ve just gone through too much to ever “go back”.  

Time makes a big difference.  I know that the longer we are here, the more comfortable we will be.  I know that many parents who have gone through what we have gone through experience post-traumatic stress disorder.  That was surprising to me when I first learned it, but it isn’t now. It makes perfect sense.  The last year of my life was traumatic.  I have gone through something that will always be a part of me, something that leaves me feeling a little separate from the people in my life.  I’m so thankful for Daniel.  We feel like a couple of soldiers that fought and survived a war together and I know in him I have someone who truly understands me.  And I’m so thankful to have such wonderful friends and family in my life who make “home” feel more like home all the time.  I have a beautiful life and my hope is that I am gaining wisdom and strength with each season I pass through.  This season has a lot of value and I’m thankful for it.

To my fellow “soldiers” out there, those who are in the trenches of life and have gone through valleys of pain that felt unbearable at the time, just know you aren’t alone.  And when you come out of that valley, it’s ok to feel like “home” is harder to adjust to than you thought it would be.  You’ve gone through something significant and you aren’t the same person you were.  I don’t have great answers and I don’t know how long this will last.  Just know you’re not alone.

Saturday, December 7, 2013

Life with bushy eyebrows

Hello, outside world... I know you still exist, even though I've been a hermit in my house for weeks and weeks.  Caleb is still officially in his "isolation" period, which means he can't go anywhere besides the occasional visit to grandparents' houses (in order to keep our sanity).  The isolation period lasts for 3 months after transplant, which means only a couple weeks left of being hermits and then we can emerge... kind of.  He still won't be able to be around crowds until flu season is over, but at least we can go to a friend's house, and hopefully at least make an appearance at church even though he can't go to his class with all the germbags other kids.  We’ve mostly enjoyed these weeks at home.  Now that it’s Christmas time and we have a tree up, the house feels so festive.  The boys love it, and I can’t believe how little Caleb knows about Christmas.  It makes sense; last year he was in a hospital and the year before he was still a baby.  It’s like he’s experiencing Christmas, like everything else in his life, for the first time.  When we got out our stockings, he didn’t know what they were.  It’s a lot of fun to watch him get excited about every little detail of this season.  You can’t help but smile and get enthusiastic right alongside him.

Despite our status as hermits, today we actually had our first outing as a family of five.  Our doctor gave us permission to attend the annual Christmas party for all Riley heart transplant recipients and their families.  Maybe to YOU a transplant Christmas party sounds like a real downer, but believe me, it was awesome.  And we were all SO excited to go!  We got to see so many friends and just being in a room with 100 other people who live in the same world we live in felt really comfortable.  I wish it would have lasted much longer.  Here’s a picture of Caleb and one of his transplant buddies, Logan.  Don’t they look alike?  They’re only a couple months apart in age.  Logan got his new heart in 2012 and we have become friends with his awesome parents.  When there was a group picture of all the transplant kiddos, Caleb and Logan sat in front and held hands.  Observe:

You probably notice right away that both of these gorgeous boys have surprisingly bushy eyebrows.  It’s from the steroids they have to take to help suppress their immune systems, it causes hair growth out the wazoo.  I hardly notice Caleb’s eyebrows, because I’m with him all the time, but when I look at older pictures of him I can’t believe it!  To me, it makes him all the more adorable.  I kiss him about a hundred times a day and tell him he is the most adorable thing I’ve ever seen.  Of course, Jonah is the other most adorable thing, and so is this one:

So back to the transplant party today.  One of my favorite things they did was have each kid come up front and say how long ago they were transplanted and what their favorite things to do are since they’ve gotten a new heart.  It was awesome to see kids that had been transplanted this year, all our friends, and kids that were transplanted 20 years ago and have graduated college.  When it was Caleb’s turn, Daniel took him up on the stage and said, “This is Caleb Kinnaird, he was just transplanted in September.  And Caleb, what’s your favorite thing to do since you got your new heart” and without missing one beat, Caleb leaned right into the microphone and said, “Eat”. I absolutely belly-laughed because Daniel and I had not prepped him for that at all.  That was just Caleb’s genuine response.  It really didn’t surprise me; Jonah has been asking him all week what he wants for Christmas and I swear to you, every single answer he’s ever given has been food.  Candy canes. Pickles. Grapes and apples.  Jonah gets exasperated and tries to explain that Christmas gifts are supposed to be toys, not food, but I am convinced that Caleb would genuinely be happy to open up a box of candy canes on Christmas morning.  What a good reminder to me about the importance of being thankful for little blessings, which are really big blessings.

The highlight of the experience for Caleb was sitting on Santa’s lap.  He has been talking about this for days and walked right up to him.  When asked what they wanted for Christmas, Jonah said he wanted some bug-catching gear and Caleb said, of course, candy canes.  And we snapped this cute little family pic.

It was a great day.  We came home exhausted since that was more activity than we’ve had in a long time.  Lucy just slept the whole day so I’m probably in for a sleepless night.  It’ll be fine.  I already know what tomorrow looks like… five Kinnairds who won’t get out of their pajamas before noon.  Jonah has already requested that we all watch The Little Mermaid in the morning.  And there will probably be candy canes involved the minute breakfast is over.  I may not get out much, but I can’t think of anything else I would rather be doing, or any people I would rather snuggle up with than these guys.  Life is good.

Sunday, November 17, 2013

Plugging along

I am totally in survival mode.  There is always a period of survival mode any time you have a new baby in the house, and so it's not totally a new experience.    I was doing laundry a couple days ago (what a triumph!) and as I sorted the five piles for the five people in this house, I realized my own pile had, like, two things in it and that was it.  Where were all my clothes?  Had I forgotten to put them in the hamper?  I thought about it for a second, then looked down at what I was wearing and it dawned on me.  I had only worn my robe for 4 days, and when you never get dressed, you never actually have dirty clothes to wash.  I will count this as one advantage of this time of isolation.  

Here's a successful day:  My children were fed, every medicine was administered on time, I brushed my teeth.  Anything above that is a major accomplishment.  This weekend I actually cooked a meal and baked some cookies and I felt like Martha Stewart.  My family raved about the simple spaghetti dinner and I felt like I had conquered the world.  Now if I could just get on a pair of non-maternity jeans... I still have about a million pounds to lose first, but I'll get there.

Everyone is doing well.  Caleb had a biopsy this week and it was a big deal and if I wasn't in survival mode and sleep-deprived, I would've been more nervous for it.  Fortunately, we got the results back Friday afternoon and it was ALL good news.  Caleb's new heart still has NO rejection!  The day at Riley went great, we got to see some dear friends and it felt like visiting our other home.  Caleb did well, he is SO incredible about having procedures.  The only issue he has right now is his blood pressure has been very high at times, and the team has been concerned.  They decided to add another medicine to our long list, and since that day his bp has been much better, but still not quite as low as they'd like to see it.  At least it's not scary-high any more, but every time I check it, I want to see a nice, low number.  Praying that it improves!

Lucy is growing and is such a sweet baby.  She sleeps through the utter chaos created by Caleb and Jonah's daily adventures.  They literally wrestle and tackle each other right beside her and she doesn't even stir.  She is starting to outgrow her newborn clothes and when I notice her little feet pushing against the feet of her sleepers, I think, "Oh yeah, they get bigger SO fast."  I noted out loud that her pajamas were too small tonight after their baths and Jonah said, "Don't you just wish she would stay this little forever?" and I thought, "What are you, a grown-up now?" He poses a good question... On one hand I wish this stage of life, when my children are so little, would last forever.  On the other hand, I happily anticipate when they are a little more self-sufficient.  Oh the joys and stress of being a mom!

Thanks for your prayers as we keep plugging along!  This new normal is starting to sink in and what we need most right now is prayers that we can all transition well.  Daniel is settling back in to his job, I'm adjusting to staying home all the time, Jonah is dealing with getting less attention than his siblings, Caleb is adjusting to life outside the hospital, and Lucy is adjusting to life outside my stomach.  In a few months the stress will be less... right?!  :)  Thanks for all the love, prayers, cards, gifts and meals that show us that we are remembered... we are so blessed by the army of people who care for our family!

Wednesday, November 6, 2013

An Overdue Update

Lucy Ann has arrived and everyone in this house is smitten with her.  If there was ever any question about how it would be to have a new baby and a newly transplanted 2-year old to deal with simultaneously, let me give you a definitive answer: the timing has been WONDERFUL.  There is SO much happiness in this house!  It helps that Lucy is a dreamboat who sweetly sleeps most of the day and is so low-key that I forget sometimes there's a baby in the house.  Although, I can't say her entrance into this world was low-key.  So much for "when should we schedule the c-section"... Lucy decided to make her appearance on her own time.  She was born on Sunday October 27 and she came so fast that even though our hospital doesn't do VBACs, there was no time for an anesthesiologist to get there.  We arrived at the hospital at 3:40 and she was born, with no drugs and lots of freaking out by docs and nurses, at 4:25.  Not at all what I was expecting!  But I'm so glad it went that way, because I was discharged the next day and haven't had to recover from major surgery!

I am one busy woman.  I am very proud of getting through each day, especially the days when I take a shower.  (I'm averaging about 1 out of every 3 days.)  I'm getting Caleb's meds down pretty well, and getting comfortable with his routine, but now of course I've thrown a newborn into the mix.  Needless to say, I don't really ever stop moving.  But we're happy.... I feel like I have everything I could ever want.  Caleb is SO full of life and joy, Jonah is over the moon to have his brother by his side and a new sister to love on.  Lucy is sweet and content and easily handles the insane noise level in our home.  Daniel is a puddle of mush with his new daughter.  At night, when the boys are getting ready for bed, I bring the baby in and all five of us climb into our bed and read together.  Jonah usually can't keep his hands off Lucy, or maybe Caleb wants to be on my lap, and there ends up being a lot of shifting and switching places before everyone is satisfied with who they are sitting next to (or on top of).  It is a messy pile of love.

It feels surreal to think of our days spent in a hospital room.  It feels like someone else's life now because honestly I've been too busy to even think about what all has happened in my life in the last few weeks.  Last night I looked at some pictures from the hospital for the first time since we've been home and it was kind of upsetting, seeing Caleb hooked up to the machines.  To think about how drastically and how suddenly life has changed is almost overwhelming.  Every time I've left the house, people approach me, people I know and often total strangers who ask if I'm Caleb's mom.... they tell me they follow this blog and share with me how our story has impacted them.  And it's so strange because it feels like they are talking about someone else's life.  Was that me that went through all that?  Was that really just a few weeks ago?  Did we really survive all that and actually come through to the other side as a happy, whole family of five?  What a crazy year it's been.

We are enjoying every day.  And we are tired every day.  :)  We are thankful and still a little bit in shock.  Life is so weird!  That's it for tonight.  I have exactly one hour before Caleb's last medicine of the day (11:00 pm) then I will attempt to sleep some before I start getting up to feed Lucy.  Much love from all five Kinnairds and good night!

Wednesday, October 23, 2013

"Normal" life

Tonight I took Jonah out on a date, just the two of us, to spend a little quality time together.  Tomorrow is his 5th birthday and we needed some time together anyway.  He was SO excited and said he wanted to wear "something handsome, not something John Deere, but something nice".  I don't know why he made that comment and believe me, it is NOT a reflection of how much he enjoys dressing like a farmer, because he tries to wear his Carhartt overalls most days of the week.  But I guess tonight was special and he informed me that I should really think about what I was going to wear, especially my shoes.  This was a bit problematic since I am at the point in my pregnancy where I have exactly 3 shirts that fit and I exclusively wear leggings or sweat pants.  Apparently I passed the test because he said I looked beautiful and opened the door for me.  He chose Bob Evans for the restaurant, both because pancakes are his favorite food and because, according to him, "it's the only place to go for a date in New Castle."  When we got there, he informed the hostess, unprompted, that he was on a date and that his birthday was tomorrow and when we were seated he asked me to sit on the same side of the table.  We sat on the same side of the booth at Bob Evans at 5:00 on a Wednesday like some elderly couple.  We both got pancakes and played tic-tac-toe until our food came.  It was a pretty great way to spend an evening.

Our home is louder than it's ever been and I keep waiting for the boys to get used to being home together but they haven't settled down since the day we first got here.  They wrestle and run and scream and laugh and throw pillows at each other all day long.  They now get up at about 6:00 every morning, Caleb first and then I hear him waking up Jonah and they go straight to their play room.  I pray this is a combination of Caleb being on steroids, which makes it hard to sleep, and the newness of being home.  I have asked God for a lot in the last year, but I still feel ok about asking him to make my kids sleep until at least 7:00.  At least for a couple days before their little sister comes into the world and takes what little sleep time I have left.  

Lucy is coming so soon... I had a doctor appointment yesterday and actually scheduled a c-section for next Friday, November 1.  Yep, she is going to be born exactly one year to the day after Caleb got admitted to the hospital.  I couldn't make this stuff up, people, this is the craziness of my life!  What a way to bookend this past year.  If someone would have told me all that was going to happen from November 1, 2012 to November 1, 2013, I'm sure I wouldn't believe it.  In just 9 days, it will truly feel like we have concluded this season of our life with a giant exclamation point.  Sometimes it feels like I am living in some overly dramatic Lifetime movie.  I think I'm just ready for some peace and quiet now.  Maybe we can burn through some months with no major events to speak of.

Caleb is doing great.  We have been going to Riley once a week and so far, so good. His first biopsy went well, and so far there has been zero rejection.  His next biopsy is in mid-November and we just continue to pray!  He starts physical therapy next week and already he has made huge strides just since we've been home.  He can go up and down the stairs with ease by himself and he can now climb onto any piece of furniture in our house.  He is THIS close to being able to run.  He sure tries!  He is happy all day long, thrilled to be in our house.  I wondered if it would bother him to have to go back to the hospital each week, but it really doesn't.  Although he does ask frequently throughout his appointment if we're "almost done" and if it's "time to go home".  He doesn't mind visiting, but he sure as heck doesn't want to stay.  Our team is thrilled with his progress, thrilled that he has an awesome appetite and energy level.  His only issue has been high blood pressure at times, which is a side effect of some of his meds.  We've been tweaking some things to control it and the doctor doesn't expect it to last for long.  If someone peeked in our window and saw Caleb playing, they would never believe he just had a heart transplant 4 weeks ago.  He is a totally normal 2-year-old.  And he is so much fun and full of life.

I think about our donor family a lot.  I think about how all this amazing stuff that has happened to Caleb and to our family is all because of them and their decision, during the worst experience of their lives, to selflessly donate their child's organs.  I hope that someday we can know each other.  Until then, I pray for them and think about them and wish I could let them see the miracle that they have given us.