Woo hoo, we're out of ICU! Caleb is happily back to his "home" on the Heart Center and he has been hamming it up for all his nurses. He is not in the same room as before, and I wondered if he would mind but he doesn't at all. He's no fool; he knows anything is better than an ICU room, and all he really needs is his harem (ha, ha) of nurses that he loves so dearly. He's in such a good mood, which makes my heart so happy!
Caleb has been peeing like a champ and puking way less. And he has been eating more than he's eaten this whole year! Tonight he asked for macaroni and cheese and a ham a cheese sandwich (it was a cheese theme) and I couldn't believe that the moment I put it in front of him he grabbed a spoon and dug in. He took 6 bites of mac and cheese, 5 bites of his sandwich and some chocolate milk. This is a great meal for him! That was just a couple hours ago and he is currently eating a snack too. The transplant team says this will be the biggest hurdle for Caleb, and what will most likely determine how long he has to stay in the hospital... he MUST eat. So I beg you to pray that his appetite grows quickly and stays consistent!! Praying boldly for my boy to be hungry!!
We had our first education session today about how to care for Caleb post-transplant. We have to meet every day in the afternoon to learn all his new medications (around 10) and what our daily life will look like when we go home. We're learning a lot and I feel very confident that we can handle this. I thought I would be more overwhelmed and I'm not. I know whatever we have to do to care for Caleb, we can do it.
I'm really looking forward to Jonah being back with us. He misses us and he REALLY misses his brother. My in-laws brought him to visit us during Caleb's nap yesterday, and we got to spend some time in our apartment at the RMH with him. When Jonah got there, he burst through the door saying, "Caleb, Caleb!" as he ran around looking for him. When we explained that Caleb was still in the hospital he got upset; he had assumed Caleb was with us. He perked up pretty quickly but it was hard to help him understand how temporary this all is. If someone could just figure out a way to explain to my 2-year-old and my 4-year-old that this will only last a few more DAYS, that would be great. :) We're getting so close to the end of this hospital stay!
That's all for tonight. I'm so ready to put on my pajamas and go to bed early. These days are full of joy but they are exhausting. I need to go rest now as Caleb is heading to bed. Your prayers are being answered so keep them coming!