Thursday, February 9, 2012
Some tears today, his and mine
Disclaimer: I am super tired and don't feel like writing, but I want people to know how Caleb is doing... so this will be short. We took Caleb to see his cardiologist for a checkup today. It wasn't a very good appointment, and not just because Caleb is now scared to death of doctors and nurses and cries when they come near him. Today, as soon as Dr. Kumar walked in the door, his face was full of concern when he looked at Caleb. He said, "Wow, he's really blue." Turns out, Dr. Kumar says something is going on, because his oxygen levels have dropped inexplicably. We have to go back next week for some tests to determine what needs to be done. This was discouraging, because I desperately wanted good news today and we started right out of the gate with a concerned doctor. Then Caleb had an echocardiogram to get some pictures of his heart and they found that his heart function continues to be weak. Dr. Kumar said if it hasn't gotten stronger at this point, almost 6 months after his last surgery, it's probably not going to improve. Which means his baseline heart function is below normal and he is at a greater risk for more problems as he gets older. We might not notice any changes in him for now, but the doctor explained that when Caleb is, say, 10 years old, we can expect some additional issues after that many years of having a weakened heart. They can't do anything for his weak heart function, but hopefully the additional tests next week will shed some light on why his oxygen level is so low. I'm not even going to speculate beyond our next step. I was discouraged, to say the least, but we had made the excellent decision beforehand to go straight to the children's museum after the appointment and spend the day having fun as a family. And we had fun instead of being bummed. Jonah and Caleb have the amazing ability to take our minds off our fears. Please pray for us this week. We go back on Thursday and I am determined not to be consumed with worry but just go a day at a time. Your encouragement and prayers would mean the world.